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Updated January, 2023
At the age of 4, she made an appearance in The Music Man. Due to her illness she spent most of her childhood in hospitals. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. She never emerged from her medically induced coma. Pink Floyd, The Beatles, The Killers, The Rolling Stones, Ben Harper, Dr. Who, Dexter, Adventure Time, SpongeBob SquarePants, Harry Potter by J. K. Rowling, The Mortal Instruments by Cassandra Clare. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. "[12] She died on September 2, 2018, at UC San Diego Thornton Pavilion. At the time of birth, she had the life expectancy of only 5 years old. Senior producer, Legacy.com. She was a wonderful person and the world . Claires Place Foundation is planning to continue extending support to patients. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. [12][1][13], In 2016, Wineland was listed as one of Seventeen magazine's 17 Power Teens. It took having a fair amount of relationships and casual sex before I realized that I wasnt the empty smiling shell of a girl I saw reflected back in pictures. She passed away peacefully, with her parents by her side. Submit an Obituary. Wineland was a singer, artist, and composer. She inspired countless people, invited no, demanded honest talk about illness and mortality, and brightened the worlds of those she touched with her smile, spunk and spirit. No Claire was born with a severe disease- Cystic fibrosis (CF), a condition that affects breathing and digestion. Then came the call that offered new life. Through videos, she shared her feelings, and her thoughts on cystic fibrosis, and life expectancy. Some people worried that shed waited too long and wouldnt be given the chance at continued life. You can have a painful life. At the time of birth, she had the life expectancy of only 5 years old. Claires foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. She had a younger sister named, Ellie. Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to the Cystic Fibrosis Foundation. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. They had been on the receiving end of that call just one short week ago. Laura McHolm, Chairman of the Board of Claires Place Foundation. Check out the death cause, death date, and more facts about the circumstances surrounding entrepreneur Claire Wineland's death. The social media sensation died Sunday, a week after she suffered a stroke following surgery for a double lung . It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. Claire Wineland's death was caused by stroke. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. It took having a fair amount of relationships and casual sex before I realized that I wasnt the empty smiling shell of a girl I saw reflected back in pictures. James Watt Cause of Death, Age of Death, and Other Facts! 2:33 PM EDT, Tue September 4, 2018. Jace Prescott Cause of Death, Date of Death, and More! Associated With She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. Claire was born with a severe disease-Cystic fibrosis (CF), a condition that affects breathing and digestion. Everything I'm proud of comes from some of the darkest things in my life. There is no passionate rant to be had here I am just happy and thought I would let you all know. View this post on Instagram The Plain Dealer. . Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. Wineland was invited as a speaker at many international conferences. On September 2, 2018, she passed away peacefully, at the US San Diego Thornton Pavilion. Her organs were donated to needy patients. UC San Diego Health, San Diego, California, United States. She has gone on to become an advocate for others suffering from the disease she has had since birth. I'm grateful for the chance to keep being a person," she said. Paul Gray Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! [5] She enjoyed performing from a young age and appeared in The Music Man at age four. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. Jace Prescott died at age 31, too young. Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012. She has a younger sister, Elanore Nordquist. Im grateful for the chance to keep being a person. Who was Ukrainian minister Denys Monastyrsky? [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. Claire Wineland (1997-2018), inspiring speaker lived with cystic fibrosis. She never emerged from her medically induced coma. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. I'm not an innocent and I'm not a child," she wrote in March. Required fields are marked *. She was placed in a medically-induced coma, for 16 days. I have found a new hero, her name is Claire, I am a US Marine and a Retired Police Officer, and just recently viewed on of Claires Videos on U-Tube, I became instantly in love with her, as Im sure many have. Claire Wineland is shown on April 4, 2016 in Rancho Palos Verdes, California. After work hours guitarist, DJ, record label owner and New York style pizza aficionado. Despite facing a life-threatening disease, she always remained positive, smiling and motivated people with her speeches and activities. By asking for it, she said, she could relax and get in the headspace for whatever would come next. She was 21 years old. I am 17 years old and a senior in high school. She is my new hero, and forever. Go enjoy it, cause there are people fighting like hell for it.. The medical team that tended to her became family. She revealed that after taking a break from creating videos for some months due to declining health, the company refused to allow her to log into any accounts relating to The Clairity Project. Shed also get a butt. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare.The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. Louis Zamperini Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She needed financial help. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. Claires gift is huge, I want your family to know that your daughter is a hero.. "The family intends to honor her memory by continuing to advanceClaire's Place Foundation, which she established to financially support others affected by her lifelong disease. Wineland miraculously came back to life. The family received immense support from friends, and community. She was chosen to be the keynote speaker at the 63rd International Respiratory Convention and Exhibition. She was a crusader for the patients who suffered from cystic fibrosis, and other terminal illnesses. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. It was released on the first anniversary of Wineland's death. This time, she was raw and allowed herself to cry. I had to be honest, she once explained. She took great care to decorate her hospital room so it felt and looked like home.Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care.Her father credits Claire with teaching him "to not be afraid of what hasn't happened yet" and to learn to "love what is. We would like to show you a description here but the site won't allow us. Clip from new video- link is in the bio i explain what happened with the ClairityProject and why I stopped doing YouTube. Obituaries Section. Shed travel, answer calls for speaking engagements and put energy into her foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. Save my name, email, and website in this browser for the next time I comment. Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care. Menu. The Times-Picayune. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. You can suffer, you can experience what its like to feel like a human beingall those messy and gross emotionsand yet you can make a life for yourself that you are very, very proud of., What people said about her: In Claire fashion, she is an organ donor. Claire Wineland 1997 - 2018 Share BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. Gregory Hines Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Wineland founded the Claire's Place Foundation at age 13. "Go enjoy your life. The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live and give more. The Plain Dealer Homepage. Given the severity of the stroke and Claires advance directive, it became clear that it was time to let her go. Her organs were made available for transplant. Dedicated daily to memorializing notable personalities. Really. [11], On August 26, 2018, Wineland underwent a double lung transplant. She was not in any pain and the medical Less than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to the United Network for Organ Sharing, which operates the nations organ transplant system. Yeager posted a video of herself doing a happy dance with friends in the waiting room.But not long after the successful surgery, hope turned to fear. In one of the last videos Claire posted, she went where she hadn't before.A self-described "goofball," she usually engaged people with humor and optimism. I would like to acknowledge Claire Wineland who passed away last night. "She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents' future if it didn't go well. I want to see where it goes. She was 21. Claire Wineland's greatest wish, her mother said, was that "her foundation will live on, even in her absence.". "Go enjoy it, 'cause there are people fighting like hell for it.". Check out the death cause, death date, and more facts about the. Despite emergency surgeries, and what her mother described as "Herculean efforts" to try to save her, the daughter she knew was gone. But Claire took on the evaluation process to get on the list with laser focus. She wasn't done contributing. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Iran man who beheaded wife jailed for eight years, Celebrities who say their children will get no inheritance, Polar bear kills woman and boy in Alaska village, Baby among six killed in possible cartel hit in US, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. Today, Claires Place Foundation continues to carry on Claires legacy. The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. Growing up, I didnt have any role models that were sick that were doing anything with their life, ever. [2][3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). https://www.thefamouspeople.com/profiles/claire-wineland-42459.php. The nine-hour surgery went well, and her mother reported that the lungs were working great. She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. Claires Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. Claires remarkable family were so happy for the other families that were now getting the calls that the organ they had long been waiting for was now available for transplant. She died on Sunday September 2, 2018, after suffering a stroke following a double lung transplant. On August 26, 2018, Wineland suffered a stroke due to a blood-clot that stopped blood flow to the right side of her brain. On September 2, 2018, at 6:00 pm, she took her last breath at the UC San Diego Thornton Pavillion, a week after undergoing a lung transplant. "See y'all on [the] other side. Jessy Dixon Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Her foundation said she had died peacefully, surrounded by family. Since there was no formal contract in place, she did not have any legal option too. Wineland hosted many videos for the channel. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. "They saw her into this world for her first breath and were with her for her last," Laura McHolm, the board chair for Claire's foundation, wrote in a Facebook post.https://www.facebook.com/clairesplace1/photos/a.201156033256783/1960745163964519/?type=3&theaterLess than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to theUnited Network for Organ Sharing, which operates the nation's organ transplant system.Claire, who understood the importance of organ donation, was a donor herself. Claire Lucia Wineland (April 10, 1997 - September 2, 2018) was an American activist, author, speaker and social media personality. See the events in life of Claire Wineland in Chronological Order, https://verilymag.com/2016/12/claire-wineland-cystic-fibrosis-living-with-chronic-illness-inspiring-women-news-1612, https://www.tah-heetch.com/claire-wineland-on-cystic-fibrosis-death-wish-coffee-company-hjh9onjzix7b1usu.html, https://www.mirror.co.uk/news/us-news/youtube-star-claire-wineland-dead-13190564, https://www.lionsroar.com/claire-wineland-cystic-fibrosis-activist-dies-at-age-21/, https://centredailytimes.org/health/claire-wineland-dead-21-youtube-star-passes-week-undergoing-44680242, https://www.wpsdlocal6.com/2018/09/03/she-expected-to-die-young-then-came-the-call-that-offered-new-life/, http://www.newindianexpress.com/entertainment/english/2018/sep/09/documentary-on-author-activist-claire-wineland-in-works-1869742.html. They saw her into this world for her first breath and were with her for her last, Laura McHolm, the board chair for Claires foundation, wrote in a Facebook post. "Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. VideoChess gets a risqu makeover, The Nigerian influencers paid to manipulate your vote, How a baffling census delay is hurting Indians, How Mafia boss was caught at a clinic after 30 years. You are an inspiration and brought joy to many. In one of the last videos Claire posted, she went where she hadnt before. "Life isn't just about being happy. She was a voracious reader and wrote books like- Every Breath I Take, and Surviving and Thriving with Cystic Fibrosis. The BBC is not responsible for the content of external sites. Music was her biggest stressbuster and was part of Philips Breathless Choir as a solo artist. [2][3] She died from a blood clot one week after receiving a double lung transplant at the age of 21. At a TEDx talk she gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. Claire Wineland 1997 - 2018 BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. Really. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. Youll be missed deeply. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. Im just really overwhelmingly grateful for all of this. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). Claire's Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. A supportive space for people & families affected by Cystic Fibrosis. Hap Moran Cause of Death, Age of Death, and Other Facts! Snap Greene is the alter-ego of 13 year old Claire Wineland. [9], The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. She was also a speaker for the motivational TEDx Talks.. Last night at 6:00pm, Claire Wineland our inspirational founder passed away. I am also, like thousands of other people living on this planet, sick. The 2019 film Five Feet Apart was inspired by and dedicated to Wineland, who served as a consultant on the film. Living a life we can be proud of is something we can control." - Claire Wineland. Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. Seeing people who are sick as anything more complex and intelligent than that would mean we couldnt use them as these false beacons of hope. In 2017, Yeager recalled a conversation with Claire about death. She was 21. After the death of Claire Wineland, her family intends to carry on the noble work started by her. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. When it came to her care, she knew her body best -- what worked for her, what didn't and how far she was willing to go.So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. [3] The foundation offers both emotional and financial support through their Support Families Network andthe Extended Hospital Stay Grants program. She was a Fox Teen Choice Award honoree in 2015[14] and received the Gloria Barron Prize for Young Heroes[3]and Los Angeles Business Journal's Small Nonprofit of the Year Award in 2014.[15]. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. CNN Sans & 2016 Cable News Network. Claire Wineland Popularity Most Popular #8596 Born on April 10 #35 Entrepreneur #31 Claires Place Foundation offers two kinds of support. She sat in an educational meeting at UC San Diego Health's transplant center and diligently took notes.Revealed on her left ankle was a tattoo: the thumbs-up "Don't Panic" logo from "The Hitchhiker's Guide to the Galaxy. 2. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. VideoChess gets a risqu makeover, The Nigerian influencers paid to manipulate your vote, How a baffling census delay is hurting Indians, How Mafia boss was caught at a clinic after 30 years. She wasnt done contributing. None of it spooked me, Claire said afterward. It's not about how you feel second to second," she said. She was of the mind that she would leave this world with the body she came in with. Discovery Company. Its not for me and never has been.. Kalpana Chawla Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! The cause of death was a massive. In April 2010, after a routine surgery, Wineland had an infection which led to lung failure. View All 253 Entries. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. Sign up here to get The Results Are In with Dr. Sanjay Gupta every Tuesday from the CNN Health team. She has a younger sister named Ellie. A double-lung transplant, when successful, can add years to a patient's life.Claire's parents learned to trust their independent and strong-willed daughter. She'd travel, answer calls for speaking engagements and put energy intoher foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. Claire Wineland was born on April 10, 1997, in Austin, Texas. Claires parents learned to trust their independent and strong-willed daughter. Im not an innocent and Im not a child. The BBC is not responsible for the content of external sites. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. Your email address will not be published. Wineland wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis and was a TEDx speaker.#ClaireWineland #death #Frostsnow Sympathy . Find an Obituary . Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. A quarter of Claires life was spent in the hospital. Claire Wineland spent a quarter of her life in the hospital. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. Life isnt just about being happy. What happened in the Ukraine helicopter crash? She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. she posted on Twitter, not long before she was wheeled into the operating room in San Diego. For more information and make a donation, please visit www.clairesplacefoundation.org.Footage courtesy of TV4 Entertainment Inc Claire, who understood the importance of organ donation, was a donor herself. The BBC is not responsible for the content of external sites. Notable quote: I do these talks to make a point. She had a popular YouTube channel, gave As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. Cystic fibrosis is a genetic condition with no known cure. Shed work on a book promising it wouldnt be another happy sick person book and appreciate the small things like swims in the ocean for as long as she was able. Read about our approach to external linking. It hurts everything inside of me to make this video, she said into the camera. Biography - A Short Wiki Entrepreneur and founder of the award-winning non-profit organization Claire's Place Foundation, which provides support to families living with Cystic Fibrosis. Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. She was 21. Chelsi Smith Age, Death, Husband, Family, Biography & More, Uriah Shelton Height, Weight, Age, Girlfriend, Biography, Family, Facts, Net Worth & More, Mary Patrux Height, Age, Husband, Family, Biography & More, Grant Gustin Age, Wife, Girlfriend, Biography, Family & More, Wejdene Height, Age, Family, Biography & More, Lee Min-ho Height, Age, Girlfriend, Wife, Family, Biography & More, Alison Brie Height, Age, Boyfriends, Husband, Family, Biography & More, Colt Prattes Age, Wife, Biography, Facts & More, Wendy Pepper Age, Husband, Family, Biography & More, Chris Zylka Age, Height, Girlfriend, Family, Biography & More, Santa Monica College, Santa Monica, California, College Dropout (left her college due to illness), She had lived in Redondo Beach, California, The Princess Bride, Harry Potter, The Mortal Instruments, Beautiful Creatures, Warm Bodies. Old Claire Wineland was invited as a solo artist died Sunday, a week she. 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